tag:blogger.com,1999:blog-6693152411433087582.post6143116242568742757..comments2023-12-13T06:25:20.119-05:00Comments on Color Me Healthy: If you are overwhelmed.....Christyhttp://www.blogger.com/profile/07257412116217529657noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-6693152411433087582.post-13490076835818774132009-02-24T09:12:00.001-05:002009-02-24T09:12:00.001-05:00This comment has been removed by the author.Courtneyhttps://www.blogger.com/profile/07532001195923370059noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-36797560376609261452009-02-24T09:12:00.000-05:002009-02-24T09:12:00.000-05:00I can't imagine how angry your parents must have b...I can't imagine how angry your parents must have been to be told you didn't have CF, to find out 2 1/2 years later the doctors were wrong!!<BR/><BR/>It always boggles my mind to hear about people making past infancy without getting their diagnosis.Courtneyhttps://www.blogger.com/profile/07532001195923370059noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-76087956162378165462009-02-21T11:38:00.000-05:002009-02-21T11:38:00.000-05:00Yes Jessie,They tested me for CF at 16 months, but...Yes Jessie,<BR/>They tested me for CF at 16 months, but I tested negative. They think the machine malfunctioned. That's what they told my parents at least. They didn't test me again until I was 4. The gluten free diets and other things they tried didn't make a difference, so that's why they retested me. I was having malabsorption, but not lung problems at that age.Christyhttps://www.blogger.com/profile/07257412116217529657noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-75807141759676333082009-02-21T10:33:00.000-05:002009-02-21T10:33:00.000-05:00Hey Christy, you were diagnosed at the age of 4? t...Hey Christy, you were diagnosed at the age of 4? <BR/><BR/><BR/>thanks for your comment about her video :)Jessiehttps://www.blogger.com/profile/09717443369354640997noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-47460327006342390322009-02-20T15:38:00.000-05:002009-02-20T15:38:00.000-05:00God knows what's in our hearts, but I know what yo...God knows what's in our hearts, but I know what you mean!<BR/><BR/>Hmmmm, me, huh?<BR/><BR/>I'll work on it and tweet you when it's done!Carriehttps://www.blogger.com/profile/05914463084777786772noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-22274887789939328972009-02-20T13:14:00.000-05:002009-02-20T13:14:00.000-05:00This is a good idea I will work on one too! Go out...This is a good idea I will work on one too! Go out and get some natural vitamin D... Oh and I get confused sometimes too! Your lucky to at least have a valid excuse with those tx drugs... Will just say mine is caused by hmmm albuterol :) Sounds good to me!<BR/><BR/>XoSomer Lovehttps://www.blogger.com/profile/05210381968499748449noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-42599222930316456612009-02-20T11:34:00.000-05:002009-02-20T11:34:00.000-05:00Ang,I think it's very common for those who spend s...Ang,<BR/>I think it's very common for those who spend so much time in the hospital (either as a patient, parent, spouse, etc) think about going in the medical field. I think that's why so many CFers become nurses or want to be nurses. I had never been hospitalized when I started nursing school, but I definitely had my share of clinic visits, meds, nebs, etc and really wanted to be on the other Christyhttps://www.blogger.com/profile/07257412116217529657noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-69348568274877227432009-02-20T11:14:00.000-05:002009-02-20T11:14:00.000-05:00Oh good, things I've learned about you. I forgot t...Oh good, things I've learned about you. I forgot that you received all your new organs from family. That is so incredible!!! I'm fascinated and have some questions for you about that. :)<BR/><BR/>When you said... <BR/>"My lung function averages around 75%. Some post-transplanters can get above 100% after receiving new lungs, but I only got lobes, so I'll never get that high."<BR/><BR/>--what do CowTownhttps://www.blogger.com/profile/15756130935907522719noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-53776885145681736472009-02-20T07:47:00.000-05:002009-02-20T07:47:00.000-05:00Good idea!! I learned so much about you in that p...Good idea!! I learned so much about you in that post!! I will do one too....Natalia Ritchiehttps://www.blogger.com/profile/05348458043785917439noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-80730247671437054512009-02-20T00:53:00.000-05:002009-02-20T00:53:00.000-05:00Great idea...loved the post. Maybe I'll do one thi...Great idea...loved the post. Maybe I'll do one this weekend like that :)<BR/><BR/>And yes...transplant does effect our memories...unfortunately :)<BR/><BR/>Oh...question: so did the extra meds for your chronic rejection reverse it or just stablize it? They haven't done anything else for it have they?? Just asking because my functions are LOW (high 30s/low 40s)....and I have had extra meds added Kateyhttps://www.blogger.com/profile/11628086713110351792noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-22698973824293555852009-02-20T00:39:00.000-05:002009-02-20T00:39:00.000-05:00That's a great idea! I've been getting some confus...That's a great idea! I've been getting some confused too, you are not the only one;)<BR/>MLil' Chris' Momhttps://www.blogger.com/profile/04604074020620433262noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-86312077166111691102009-02-20T00:31:00.000-05:002009-02-20T00:31:00.000-05:00Fantastic!! Im going to do mine now!Fantastic!! Im going to do mine now!Kelleehttps://www.blogger.com/profile/18375802334017681242noreply@blogger.comtag:blogger.com,1999:blog-6693152411433087582.post-10151267755507326742009-02-19T23:17:00.000-05:002009-02-19T23:17:00.000-05:00I learned something new about you!!! I didn't kno...I learned something new about you!!! I didn't know you were an RN...very cool. I always told Brandon after living in the NICU for 6 months before Bennett's death, that I would LOVE to be a NICU nurse. We consider Bennett and Ellie's nurses our family ~ to this day. Thanks for the continued prayers. In retrospect, we really aren't in bad shape...a little cold...a little fever, but we're all B, E and C's Mommyhttps://www.blogger.com/profile/14915859653357953401noreply@blogger.com