Showing posts with label Jason. Show all posts
Showing posts with label Jason. Show all posts

Tuesday, January 5, 2010

1st blog of New Year!!

Well, even though it was quick, we had a great Christmas. Casey got her iPod touch she wanted, so all is right with the world. LOL. We really do want next year to be all about giving to those in need and not to those who aren't in need, so that is going to be planned immediately, so that friend and family aren't shocked in early December with my idea. :)

We were able to go up to my hometown to see my grandparents and extended family on my mom's side, and to see my Dad's side of the family too!!! It was a great day. I love them all SO much, and I can't imagine not having all of them here.

We finally got our tree down and the house clean yesterday. It is amazing to have my house back. I'm not sad at all that the holidays are over. However, I am very saddened about my dear friend Angela's family. Her mom isn't expected to live another 48 hours. I just can't believe it's real. I truly hate cancer!!!! Please keep Angela and her family in your prayers. They are struggling as you can imagine.

I wish I had some monumental awesome thing to tell you, but I really don't. Casey is back to school and had a great, but cold day. She was glad she wore her long handles. :) Her school was really cold she said. She is in a geography bee on Wed, but hasn't done much studying for it. We will cram tomorrow night.... hmmmm... reminds me of my college days. LOL.

Jason goes on 1st shift on the 17th. It's a 10% pay cut, so I feel I need to find some kind of work to help get that back. Just not sure what to do. I'm not comfortable enough with my photography yet to charge for it, but I do plan on taking a Photoshop CS4 class soon, so that will definitely add to my photos. Still loving my 50mm f/1.4 lens. :)

Casey has several things she wants to do this summer, but it would take her away for 6 weeks. I told her she could do 2 out of the 3, but she isn't sure which 2 she would choose. I feel bad, but I LOVE my summers with her, and don't want her gone the entire summer. We will see what she decides.

I am flabbergasted... my hair has already grown about an inch. My hairdresser has always told me that my hair grows fast, so that's really good, b/c short hair is SO hard to take care of. I have naturally curly hair and when I leave it curly I look about 12. If I straighten it, I look my age, but it takes so long to fix. I can't wait until my ponytail is back, but am just thankful it's coming back at all. :)

To all my friends who don't have facebook, you don't realize how awesome it is to connect with those you haven't spoken to in 20 years until you get on there. I do wish you would all join.... believe me, I'm on there everyday and many times a day... haha!!!

I am ordering new glasses this week. Mine are old and worn out. I also go to Duke on Thurs for a much needed kidney tx appt. Oh for those of you who don't know tx=transplant. I always abbreviate without thinking of those who don't know that. I will go again the next week for a bronchoscopy where they biopsy my lungs to make sure the rejection is still staying far, far away!! I know it is!!! :)

I have many friends in need of lungs. I hope that you will keep all of the people in your prayers waiting on lungs, kidneys, liver, intestines, pancreas, eyes, tissue, heart, etc. There just isn't enough going around, because there are still those not signing their donor card. What a WONDERFUL last gift you could give someone!!!!

Ok before I go, I must shout out to Kristin, Nicole, Rhonda, Anne-Lewis (who turned 40 on Sunday), and Trenda who are my most dearest friends from VA. And also big prayers to one of my besties Angela, who's mom is in the process of dying as I write this blog. I can't tell you the sadness I feel. :(

I am looking forward to the new year. I hope all of you are too!!! Love to all!!

Thursday, October 15, 2009

If I have any readers left at all...

then maybe this post won't be for nothing. :)

Facebook is my go-to place now for info on my friends and to keep everyone updated on me. I'll try to catch up my blogger readers now.

Since my last post, Casey has started a new school, and she really loves it. It is A LOT of work and very challenging, but the environment is more of an academic environment instead of a regular public school environment, so it's just what she needed. Her goal is still to go to Duke University and go to med school. She still has her sites set on becoming a surgeon, so we will see how that goes.

She has also been running cross country this year. She is doing so well with it. I was worried at first, because Casey is and probably always will be a toe-walker, so I was concerned about her running, but her doctor gave her approval, so that's all I needed to hear. I wouldn't say Casey is enjoying it, but she's dedicated. I really hope that she continues to run after the season is over next week.

Jason is doing well. He is still working 3rd shift, which is pretty tough, but we are just so thankful he has a job in this economy. He does sleep well during the day, so that's a big plus. As long as I can keep the pups quiet, Jason will sleep a good 8 hours during the day. I never did that when I worked 3rd. LOL.

As for me, I had a birthday since my last post. I'm now 39 and so thankful to have made it beyond the age my doctors ever thought I would. Every year is a blessing! Well, minus the wrinkles and saggy stuff. :)

I am currently experiencing some mild acute rejection of my lungs. Well, since my lobes are from 2 different donors, I'm really only experiencing rejection of one of them, but they didn't tell me which one, so I am not sure whether to blame my mom or my uncle. haha. I am finishing up my 3rd day of IV Medrol (a steroid), and will start on a taper of prednisone tomorrow and decrease each day until I reach my baseline of 5 mg/day. I will then have another bronchoscopy (where they take a biopsy of both of my lobes) in November to make sure the rejection is gone.

I am also dealing with the same hair loss that I had after my first transplant. I finally got an answer at my last lung transplant appointment as to why I am losing it. All of the proteins I take in have been going to my kidney transplant site to heal it. Therefore, my hair hasn't been getting the proteins it needs. I was told that typically if a transplant recipient is affected by this, the hair will start to fall out about 3 to 6 months post-transplant and continue for about 9 months. So, as soon as your hair starts falling out, new hair is replacing it. I have strands about 2 to 3 inches long from where it started falling out and coming back in about 6 months ago, and I still have long strands that are falling out. I will have to end up cutting a lot of my hair off again, but I don't think I'll have to cut it as short as I did after my first transplant. I'm also back to (or close to) my natural color again, which is brown. I'm mostly wearing hats or wearing my hair up now, since it's crazy with fly away pieces and very thin long pieces. Thankfully, my hair does grow pretty fast. :)

I am very happy that fall is finally here! I love fall and winter! We are planning on heading to the mountains in a couple of weeks to see the beautiful leaves before they all fall away.

I am still loving photography and got a new lens from my hubby for my birthday. I'm having fun with it, but of course have at least 3 other lenses I want to add to my camera bag. It certainly isn't the camera that costs so much in photography. But the lenses DO make all the difference. Casey is enjoying photography too, even though she has very little time for it right now with her schedule.

The pups are doing good. Balin has had some stomach problems, but they have now attributed that to stress. He still hasn't adjusted to Mia, and I don't know that he ever will. I keep them apart the best I can. I am loving Mia so much though. She is the cuddliest little dog I've ever had. She's now a whopping 3.5 lbs. She looks huge to me.. haha.

The rest of my family is doing great. Dad is still antiquing and Mom is still babysitting my nephew, who is now 4. He will go to kindergarten next year, which is amazing to me. Time flies. My niece Caroline is going to the same school as Casey and loves it as well. My sis and her family are all settled in their new home and are loving it.

As for our house, it's still not up for sale. I guess it will be one day. Now, I'm saying to Jason.. let's just wait until spring, but he says put a for sale sign in the front yard now. We are going to try to sell it ourselves first, and will then go to a realtor if it doesn't sell. The last house I sold on my own was bought by the first couple who looked at it, so I really hope we are that lucky again. With this economy though, I'm not so sure.

My friend Trenda recently had her 4th child, a little boy named Levi. I am so happy for them. She lives in my hometown in Virginia. I really need to get up to Virginia soon and visit my grandparents and other family members, and my many, many friends, some of whom I haven't seen in years. Now that I've gotten in touch with a lot of them again on facebook, I want to see them!!!! There was a reunion of sorts this past August, but I wasn't able to go, because of the side effects I was having from some IV meds I was on, so I'm hoping to at least make the next one... whenever that may be.

Here are a few pictures taken this fall. If you are a facebook friend, you've most likely seen them. If not, enjoy...











Sunday, May 31, 2009

Missing in Action

Well, missing from blogger world at least. Things have been pretty busy here. We've been getting our house ready to put up for sale. It seems when we think we are getting close, there is more to do. Jason is putting up new fixtures outside today. I didn't realize how bad the old ones looked. We did manage to get quite a bit of furniture moved out to a storage building, so the rooms look larger now.

Most of our plans for the summer consist of getting this house on the market. Casey is going on a mission trip, so I'm happy for her. We won't be taking a big vacation this year. I'm ok with that! My dear friend Lori is coming for a visit in a couple of weeks. I can't wait! We have a lot of catching up to do.

Please keep my friend Sara in your thoughts and prayers. She got new lungs in 08, and is experiencing some rejection right now. She had a major treatment yesterday that completely knocked out her immune system, so I'm hoping she doesn't have too many side effects from that. She's the one I've blogged about before who ran a 1/2 marathon only 8 months after her double lung transplant!!!

Yesterday we went to my SIL's house for her youngest son's 1st birthday party. Her boys are a delight to photograph. She has a 1 year old and a 6 year old. After taking pics yesterday, I realized more than ever how bad I need a new lens for my camera. The more photography you do, the pickier you get I guess. I've been busy part of the day cropping feet out of photos.. haha! When you take pics of a toddler on the floor at a party, you tend to get a lot of feet in the background. Here are some of the pics. I love the one of Jason's sister and her sweet little boy.












Monday, May 25, 2009

The Biltmore Estate

We visited the Biltmore Estate on Saturday. The 250 room home is the largest in the U.S. It took 6 years to build and it opened in 1895. George Vanderbilt lived there with his wife and daughter. It still belongs to his daughter's family, but of course is open to the public now. The estate originally consisted of 125,000 acres, but now is 8,000. They have a winery and gardens. You can read more about the history here.

If you have ever seen the movie "Hannibal", it was Mason Verger's house. Much of that movie was filmed in Asheville, where the Biltmore is located.

Here are some pics from Saturday. Unfortunately, no pictures were allowed in the home itself:



























Wednesday, May 6, 2009

Wordless Wednesday