Sunday, February 21, 2010

Things to do before tomorrow

Everyone else going into the hospital tries to get too much done the day before also?? Right? Yeah, that's what I thought.

I'm making my list while I enjoy my coffee. :)

1.) Shower and shave! ha!

2.) Finish laundry

3.) Pack clothes/toiletries

4.) Make sure house is clean

5.) Pack up meds, diabetic supplies, nasal irrigation, OTC's

6.) Fill bird feeder

7.) Bathe doggies

8.) Call necessary people

9.) Pack up laptop and accessories

10.) Pack up camera and accessories

11.) Go to Target for snacks and other items

12.) Go to library

14.) Access port-a-cath

13.) Give TONS of love to Casey and the pups!!!


I am hoping they get started tomorrow on the rATG, but have a feeling it will be Tuesday. I am assuming I will have to have a nurse with me the entire first dose to monitor for reactions, so that requires an extra staff person (just like when I get desensitized to an antibiotic). That means scheduling changes, and that usually takes a day.

I forgot to mention in my last post that not only are they seeing changes with my lung function tests, but they are also seeing changes on my xray. They have noticed that my smaller airways are stretched out a bit, which means that air is getting in there and getting trapped and cannot get out. The reason for that is the scar tissue that develops there when you get chronic rejection. They are hoping this med will help that issue also.

Ok, coffee is done and I have to get busy. I'll be facebooking and blogging this week, and I'm sure for those of you on my FB, you will continue to see goofy pics that Jason feels the need to take. You know.. the sign pictures. LOL!!!!

Have a great week everyone, and please keep me and all of my CF friends in your thoughts and prayers. Many are struggling! Thanks!! Love to all!

10 comments:

OceanDesert said...

Wow! Now THAT's a list! :)

Once you get all those things done, you'll feel relieved to get to club med and relax! lol!

btw, are they switching you to Rapamune? Or are you on that already? Just wondering! That's one of the changes they made with me...

Thinking of you and will be watching for updates!

HUGS!

whatsherface said...

*raises hand* - another CFer here who has a mile-long list of tasks to complete before going into lockup. The only difference here is I usually wait until the day of instead of getting on the ball the day before!

Good luck getting everything done and wishing you even better luck that your admission goes smoothly and this med gets the job done!

*hugs*
Rhi

Christy said...

No Sara, they aren't switching me that I know of. I know they won't replace my prograf with it, because my doc has seen too many episodes of rejection when he does that, but adding it on?? I don't know, but I am thinking when we discussed this in 07, he told me that it wouldn't be good for b/c of some side effects. He was speaking on my case in particular. I know he isn't against it totally. Thanks for your thoughts and hugs! LOVE YOU CYSTER!

Rhi,
Haha.. I thought I was bad for sitting around yesterday and watching Criminal Minds episodes and not getting things ready to go. :) I feel like I'm rushing today. Thanks for your thoughts and well wishes!!! I have the BEST Cysters in the world Love you!!!

LJ said...

good list! Shaving is #1 on my..."Do you have swelling in your legs or feet?" You: Nope but they look darn good and smooth ...lol Our list's are so much alike, love it! Email me your or we can skype. Love you girl!

OceanDesert said...

Ah, ok... they switched out the CellCept for the Rapa for me.. I still take Prograf though. I guess I don't know how Rapa works with kidney tx?

ps.. I love that you are still going to feed the birds while you're gone.. you are just too sweet!!!

xoxoxoox

Jess said...

Wishing you tons of luck, and that the meds do the trick for you!!! Thinking of you! xo

Amy said...

sending you hugs and love Christy!

Aimee said...

I am the same way :)
I am just a huge procrastinator though, ha ha.

I will be thinking of you and sending love from the west coast!

Love ya!

Katelyn said...

Wow - you are so much more organized that I am! I'll be thinking of you and praying as you start this treatment! Go Christy! Go, go, go Christy!

Somer Love said...

it always seem like we have to do SO much before going in...

I dread the times where you go into clinic and they want you in that day or the next... Thats when I start running around like a chicken with his head cut off ;)