Friday, July 30, 2010

Ups and downs and all arounds

Hi blogger world! Another lengthy break between posts. I thought I would give everyone an update on the happenings in our lives.

I'll start with my health and get that out of the way. :) Most of you know they found skin cancer on my toe of all places. Yeah, that's what you get for being immunosuppressed. To make a long story short.. thought I was going to have to have it surgically removed, and a skin graft done. Saw a surgeon at Duke yesterday and he seems to think "that would be like putting a campfire out with a fire truck". Hehe. He said it would do the job, but he thought that was way overdoing it. Squamous Cell Carcinoma or SCC can become invasive and in rare cases metastasize, but he doesn't seem to think that I have reason to worry about either of those. For right now, I'm just going to be using a chemotherapy-like cream on it called Aldara. I use it on my face also for some places I have there that look suspicious. I see my dermatologist pretty regularly at Duke, so she will keep a watchful eye on it.

I have been having some swelling for the past month or so. I saw my nephrologist yesterday, and he doesn't think it's my kidney causing it. He ran a few extra tests to make sure, but if I continue to have it, I will need to have some studies done on my heart and liver to rule them out as the cause.

Let's talk about hair loss.. ughh!!! So, you all know I lost most of my hair after my lung transplant, a lot of my hair after my kidney transplant, and that the rATG treatment I had for my chronic rejection back in March was beginning to thin it too. Well, these past 2 weeks have been awful as far as hair loss goes. I'm not so sure why I'm so prone to hair loss when I'm given meds to knock out my immune system. I have friends who have been given much stronger meds, and it didn't affect their hair in any way. I'm frustrated!!!! I really am. This is the 3rd time, and I know if I ever have to get another treatment for my chronic rejection again, it will happen a 4th. I am taking Biotin and using men's rogaine (per my dermatologist's suggestion), but so far, I'm not seeing any difference.

So on to more exciting things... Casey has had a very busy summer. She has been to the beach twice, to Sint Maarten, will be going to visit her cousins in Pennsylvania for a long weekend, and will go with my family to the mountains in several weeks. She is currently in the middle of her driver's ed classes. One week down after today, and one week to go. She gets her learner's permit in November.. YIKES!!!!

She wants to start tutoring this coming school year to raise money for her Spain trip that she is taking next spring. Her father and I have told her that we want her to raise $1000 for the trip, so she has already been saving her allowance. We'll see how that goes. LOL.

Jason is working a crazy shift now.. 11 am to 8 pm. It's really not so bad, because he gets up early and gets things done, and since we eat dinner late anyway, he is home for dinner. Of course it's not the ideal work schedule, but much better than the night shift. We aren't sure how long he will stay on this shift.

We FINALLY, yes FINALLY have our house up for sale. We've had one interested buyer, but haven't heard back again from her. We haven't really advertised yet other than sticking a for sale sign in the front yard, so I'll be getting on that this coming week. We are looking to move about 20 minutes from here, which will be closer to Jason's work, and closer to the school that Casey's current school will be moving to in 2011. Plus, it will get us out of city taxes which will be nice.

My birthday party is coming up as most of you know. We still have a lot of planning to do.. most of all... meeting with our caterer about the menu. I'm super excited about seeing all of my family, old friends, new friends, friends I've only known from the net, etc. What a great time it's going to be. I have to admit I'm a little anxious though, because of my hearing loss. I don't do well in social situations that are noisy because of that. Of course I'll have my hearing aid on, but I'll still struggle with it.

The rest of my family is doing well. My nephew goes to kindergarten this year.. just super unbelievable. The pups are good, and in general.. life is good. I hope it is for all of you as well. XOXO

Random photos:


kasey said...

I love your blog!

If it makes you feel any better, I have the SAME problem with my hair. Immediately post transplant it was awful. When I rejected a year later and I was given the big guns (OKT3) it was the worst and now it's just bad. I'm only on Prograf too, so it's VERY frustrating. Give Biotin a few weeks though...and don't stop taking it. It truly did, and has, made a difference in my hair.

I can't believe Casey is growing up SO FAST. What a beauty she is.

I think about you ALL. OF. THE. TIME. You're amazing.

Christy said...

I didn't realize you had those problems with hair loss too Kasey. Your hair ALWAYS looks so gorgeous. I will definitely keep taking the BIotin. Thanks!!!

Yeah, my Casey is growing up so fast for sure. I sure hope you can make it to the party, because I know both of us would LOVE to see you. I think of you all the time too girl, and just love all your pics on FB. XO

OceanDesert said...

Glad things are going in the right direction! Now let's just get that hair growing ;)

Casey is going to be DRIVING?? Wow, amazing!

LOVE the pics!

Christy said...

Thanks Sara. I know I have little to complain about when so many things are going right. :)

YES.. so hard to believe my girl will be on the road in her silver Prius very, very shortly. LOL.

Shea said...

So nice to see an update for you! I tried to look for you on facebook, but I stink at it lol. I'm Shea Johnson Drummond if you can find me.

Lil' Chris' Mom said...

Thanks for the update.!

Jess said...

I think the Prograf has affected my hair as well. It's defintely thinner, and at times I've been pulling out knots of hair! It's annoying, I hope that stuff works for you!