This is for my non-Facebook, non-Twitter friends. I got purple highlights for Cystic Fibrosis awareness. Crazy but fun!!! XO
10 comments:
Anonymous
said...
omg...omg I love it!!!! I want to do mine too. I did my nails purple next big step may have to be my hair! I will be praying for you tomorrow...I love and miss you sooooo much! If Jason or Casey can text tomorrow to let me know evderything is good to go I appreciate it! Love always..XOXOXO
Great to have a high spirit and stand and support the ones who are suffering.There is so much need for the patients to beloved and supported.Nice postings here.
Christy, I was wondering if you had seen a article about recent findings about the severity of Cystic fibrosis is determined by genetics? http://www.dailyrx.com/news-article/cystic-fibrosis-severity-determined-patients-genetics-13745.html Talks about the altered genes involved with CF.
I am so happy for you. You are blessed as you said. Today, September 27, three years ago his brother, my aunt and I decided to have his life support terminated. He died exactly one month before his 30th birthday. Please, enjoy and love every moment you have on this earth.
I am a 49 year old wife and mom. I have a beautiful 24 year old daughter named Casey who brings me more joy than I ever thought possible. I love being her mom!
I have Cystic Fibrosis and had a double lung transplant on Nov 12, 2001 and had a kidney transplant on Nov 10, 2008 and another one in 2018. I was diagnosed with CF when I was 4 years old, but my first hospitalization wasn't until I was 23. I was very blessed to have a daughter at the age of 25. After Casey was born, I worked in the nursing field for 3 years before becoming very ill with a mycobacterium in my lungs. Three years after that, at the age of 31, I had a double lung transplant at Duke University Medical Center. Because of an anti-body issue, I had to receive organs from a relative, so they removed both of my lungs and replaced them with a lobe from my Uncle Joey and my mom. What a gift they both gave me!! Because of diabetes, the anti-rejection meds and high blood pressure, I had to have a kidney transplant 7 years later, which was also donated by my mom. God has brought me this far, and has blessed me in so many ways.
10 comments:
omg...omg I love it!!!! I want to do mine too. I did my nails purple next big step may have to be my hair! I will be praying for you tomorrow...I love and miss you sooooo much! If Jason or Casey can text tomorrow to let me know evderything is good to go I appreciate it! Love always..XOXOXO
So cute!!! I love it!
Aww SWEET!
You are cute as a button. :-)
It's fantastic!!!
LOVE IT!!! You need to call me! I have so much to tell you....
You look GORGEOUS!
I LOVE LOVE IT!!!!
Great to have a high spirit and stand and support the ones who are suffering.There is so much need for the patients to beloved and supported.Nice postings here.
Christy,
I was wondering if you had seen a article about recent findings about the severity of Cystic fibrosis is determined by genetics?
http://www.dailyrx.com/news-article/cystic-fibrosis-severity-determined-patients-genetics-13745.html
Talks about the altered genes involved with CF.
I am so happy for you. You are blessed as you said. Today, September 27, three years ago his brother, my aunt and I decided to have his life support terminated. He died exactly one month before his 30th birthday. Please, enjoy and love every moment you have on this earth.
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