Tuesday, September 23, 2008

Am I ready?

Yikes!!! My transplant coordinator at Duke called with my kidney function test results. It's at a level now where they want to do transplant as soon as possible. She said "We can schedule it for Friday, October 31". I'm like.. "What???????????? That soon??" The docs at Duke seem to think that peritoneal dialysis may be a bad idea for me. Since I'm so small, and this type of dialysis puts fluid in your abdomen to sit and collect the toxins that are drawn out of your blood, they are thinking that the fluid may cause me some respiratory problems. Because of the volume of fluid that is put in your abdomen, it may compress my lungs and decrease my lung function. They want me to discuss this with my nephrologist in Charlotte, but Duke docs are voting to skip the PD and go straight to transplant.

Mentally, I have been thinking January..ish for transplant. Hearing them suggest I get it next month is a little overwhelming at the moment. Plus, Jason only has a day or two left of vacation this year. If we waited until January, he could take vacation to be with me after transplant. If I got it this year, he would have to take days off without pay, which is not something we really want him to do with a lot of new medical bills coming in.

God is in control. I know that things will work out for the best... they always do. I would appreciate your prayers now. I need to make the right decision... for me and for my family. My mom is ok with any date. She's the best!


Anonymous said...

WOW! i am shocked to hear how soon...i will be praying for the perfect timing. thank God for the amazing dos at duke and of course your fabulous mother! God bless her! if you get a chance give a call, if not i will try you towards the end of the week. i love you! GOD IS IN CONTROL:)

Anonymous said...

After Sara's experiences, I've seen what good timing is like, so I'll be sure to keep your perfect timing in my thoughts as well!

Debbie said...

I agree, Wow! It can be hard to adjust to a new time frame when you thought you knew what was going on. I am sure you want Jason there, but yes money is an important thing as well. It sounds like some good things could be happening but decisions can be so hard. Sometimes you wish God would just speak out loud so you knew what to do. It is hard when you have drs. looking at it from different angles. I will be praying for you, your family, & the right timing. Thanks for the update.

Jennifer said...

That is soon! I hope that you will be guided to the right time for the surgery. As you can tell from my recent blogs, I know what it's like to have surprises thrown at you, so I hope you're just rolling with the punches and okay with it!

Cara said...

YES! You are ready! Praying for you and very excited for you! :)

And, nooooo, I do not wear a mask when I mow! I didn't know that I needed to. I will from now on though. Thanks for the heads up.

kristin said...

I would move the transplant up! I think the doctors are right at Duke! I had a kidney transplant 24 years ago and it is still working. I had to have my date moved up too!
Good luck.

Marjolein said...

Oh my, Christy
That's really soon
I hope it will all go as planned. Without any majour issues.
Hearing about the dialysis sounds quite scary too, with the side effects that can occur.
Though wanting to have Jason there, I can imagine you would really want that.

Thinking of you!
24/CF/2 years post double lungtx

Lisa J. said...

WOW that is fast! I am sure they have good reasons to want to do it ASAP.