Monday, January 26, 2009

Party Room!!

We arrived at Duke about 6:00 and I was in my room by 7:00. We actually got one of the "party rooms" that has a sofa, frig, table and chairs, and tons more room than the other rooms. I have been coming to Duke for 8 years now and have only gotten a party room 3 or 4 times. Anyway, it's really for those who have a lot of guests, and well... I won't be having any (other than my hubby), but it's still nice to have extra room.

As I've blogged before, I have been having night sweats for several weeks now. They have gotten so bad now, that I have to change my clothes sometimes twice in a night and have to move from bed to bed because my sheets are so wet. Because of that, and because the Cipro doesn't seem to be taking care of my sinusitis, they have brought me in for some IV antibiotics. I was supposed to come in last Thursday, but they had no beds on the floor I need to be on, so they said to wait until today. Nurses on this floor are trained to do desensitizations, because this floor (the pulmonary floor) is also a step-down unit.

The last time I had night sweats this bad was when I had a mycobacterium in my lungs. They do not think that I have any mycobacteriums in my lungs, but they are going to do a blood culture and a sinus culture to make sure there isn't one in either of those places. These sweats could be coming from the pseudomonas that they know is in my sinuses already. It's just strange that it has never given me night sweats this bad. My body has changed a lot.. in a lot of different ways.. since kidney transplant, so it's possible this is just something else that has changed.

So... Jason and I are settled in. Casey is at her dad's. It was his birthday today, so it worked out well that she got to go be with him. I talked to her earlier and she was baking her dad a carrot cake. She was whispering on the phone and she said..."Mom, what do you do if you don't have any vegetable oil and the recipe calls for that?" I told her to use olive oil, and she had no idea that one could be substituted for the other. She later called and said it turned out great. :)

Jason is on his playstation.. no, he doesn't go anywhere without it.. haha. I have been going through admission paperwork with the nurse and intern. We have good interns this time around (the nurses have confirmed). When you are in a teaching hospital, you just never know what your gonna get.

They are supposed to come in later tonight and get blood cultures and sinus cultures. Who knows how late I'll be up for that, but that's ok, as long as they can start the desensitization tomorrow. If all goes well, I should be out by Wednesday, and will be on the IV's for a month. I see the ENT next week to discuss surgery options.

Thanks everyone for your thoughts, prayers, comments, phone calls, emails, etc... They mean so much to me!


Guga ® said...

Hi! My name is Gustavo and I am brazilian.
I'm so happy about your testify life and faith!
Knew that I will pray to you.
Do you like my virtual friend?rs
So, I could to practice my english. I have some dificuld, but "trainning, learning", all right?rs
God bless you!

Ellie Grace and Bennett said...

Hey Christy,
You are in my thoughts and prayers!!! I am so glad that my husband isn't the only that is still playing his playstation!

Rebecca said...

Gosh Christy please get better soon. I hope it is something simple. You are in my thoughts.


Cara said...

Wooohoo, party in your room! ;)

Praying for you and thinking about you!

OceanDesert said...

NICE room! I love it when there's a fridge in there especially... Thinking good thoughts that the antibiotics kick those Psuedo's butts and you are home SOON! Hugs!

Genevieve said...

You are on my heart love...

Jen said...

Hope everything goes well and you get to go home soon!! IM also glad to know I don't have the only husband in America who is ALWAYS on the PS3!! lol :)


Debbie said...

I pray that the doctors will get things figured quickly & the meds work. It is so nice that Jason can be with you. I am sure Cassie would like to be there too though she must be use to it by now. Have a great night.

Somer Love said...

Sorry your in the joint but on the bright side how awesome is the party room I wish there was one of those at the U. Night sweats are the worst I hate when you have to change clothes because of them. Hope fully this will fix it!

Your in my thoughts and prayers!


Katey said...

Wow....i'm jealous about that room! Definitely a party room! I'll be praying for you and I hope everything goes well!! I hope the night sweats get better too. I've had that before, and its no fun changing clothes in the middle of the night :)

My Three Sons said...

Hello, I came across your blog through Phenny and just wanted to let you know that your family is in my prayers.

I'm a very proud mother of three boys and my youngest son was tested for CF back in May. It came back negative but we have had our share fair of medical challenges.

You have a beautiful family and your daughter and I share name is also Kaci. Just spelled different.

Anyways, I would love to follow your journey if you don't mind and again will pray that your in and out quickly.

Take care and God Bless

Kristin said...

Praying that your time goes quickly. I am glad to hear the interns are frustrating when you know more than they do :)

Lil' Chris' Mom said...

Keeping you in my prayers. Sounds like my husband... playing PS-I don't get it:) LOL

Katelyn said...

I'm thinking of you and praying for you Christy!

Tooter's Mommy (Courtney) said...

I hope you get better soon! We will keep you in our prayers.

Cindy said...

Hope that all goes well & you are out of the joint soon! Love the room, nice!

Aspiemom said...

I'd come party in your room if I could.

I hope the desensitization goes well. My sweats are menopausal hot flashes. yuck.

Right now my meropenum is giving me insomnia. Wonder how long I can go on 3 hours of sleep a night?

Carrie said...

Wow that room is cool. Much better than being squished in a little room. Hope everything goes well and will keep you in my prayers!

Laryssa said...

You'll be in my daily prayers. Hope all goes well!!

Layne said...

Rhi and I should come visit you. We know how to party up a hospital stay using puff paint and a bed pan. W00T!