Thursday, February 5, 2009

Update and prayers

I'm sorry I haven't updated on Jenn, but I haven't heard any news at all. I keep checking my CF forums for updates, but so far there are none. I am praying that no news is good news! I will update as soon as I hear/read something.

I've been having some edema (swelling) that I normally don't have, so I am headed out to get blood work to make sure my kidney function is stable. I still haven't heard back from the ENT on a surgery date, so I guess I'll be calling them again in the next day or 2 to see if it's scheduled.

Casey was out of school yesterday because of the tiny amount of snow we had. By 9:00, it was mostly melted.. LOL, but it was really nice having her home all day.

I'm almost caught up on my photography class. I have a few small assignments to do today, and I should be caught up. I have learned a little, and hope to learn a lot more in the next class that I'm taking in March.

Please keep my dear friend (and living-related lobar sister) Lori in your prayers. She was the first transplant recipient I ever met. She had the 2nd living-related lobar transplant at Duke, and I had the 4th. What a great friend she's been to me. It has been almost 9 years since her transplant and she is experiencing some chronic rejection. She also has something else going on with her lungs that the docs can't put their finger on. She'll be getting a bronchoscopy (biopsy of the lobes) in about 2 weeks to hopefully get a diagnosis. Please pray that her numbers come back up and that she's feeling back to normal soon.

7 comments:

Lil' Chris' Mom said...

Good luck. Praying for you and your friends.
M

Alicia said...

I'm pretty down-so many CFers I know are struggling right now. I'll be praying for you.

Christy said...

I know what you mean Alicia. In the past few months, it seems like CFers have just been so sick. I'm really tired of losing friends!!!!!!!!!!!!! I can't wait until the day we can finally kick CF's butt for good.

Aspiemom said...

I keep checking the forums for an update on Jenn, too. Hmmm. And Garran. Sounds like he is doing well.

I hope you aren't having too bad a problem with the edema. Is it from the abx?

Somer Love said...

Ill pray your blood work comes back great and that your two friends have a full and speedy recovery!

Mommy of a miracle said...

This is the first time I have ever been to your blog, but I just wanted to tell you that you are amazing and I can't believe everything you have gone through. I thought my story was bad. You will be in my prayers!

LJ said...

Living lobe sister, thank you girl! I love you and I always keep you in my prayers..I am thinking positive for your blood to come back soon. I miss you and wish you were closer..I know I say it all the time but I really do. Have a good weekend. XoXo