Some of you have asked what medications I'm on, so I thought I would list my current medication regimen. This is mostly for you post-transplanters out there. The rest of you will probably find this boring. :)
For those of you with CF, who haven't had a transplant, you will be happy to know that most post-transplant CFers can stop all nebulizers shortly after transplant (It was 3 months post-lung-transplant for me). Pills are so much easier. I have only had to go on a neb once since 3 months post-transplant, and that was for an acute bout of pneumonia caused by pseudomonas. I do however have to go on IV's periodically for the pseudo in my sinuses.
I have listed my medication, the dose, what it's used for, and the CURRENT side effects I am having on it. The side effects change periodically, as do my meds...
Prograf 0.5 mg in AM 1 mg in PM; To prevent rejection; Shakiness, hair loss, risk of infection
Prednisone 25 mg in AM; For Healing, prevent rejection; Moon face, mania, hunger, irritability, risk of infection, insomnia
Cellcept 1000 mg twice a day; To prevent rejection; Nausea
Nexium 40 mg twice a day; To prevent reflux; None
Torsemide 10 or 20 mg a day; For swelling, bp; None
Aspirin 81 mg in AM; To prevent clotting; None
Amitiza 24 mcg twice a day; For Irritable bowel syndrome; None
Actigal 300 mg twice a day; For Gallstones and liver health; None
VFend 200 mg twice a day; To prevent fungal infections; Blisters on skin in sun
Zithromax 500 mg M, W, F; For chronic rejection of lungs; None
Pancrease MT10 2 to 3 with meals and 1 to 2 with snack; To help digest fats; None
Gancyclovir 500 mg twice a day; To prevent CMV; None
Bactrim DS M, W, F; To prevent pneumonia; None
Miralax 17 gm as needed; For constipation; None
Ambien 10 mg at night; For sleep; None
Novolog insulin approx. 45 units per day; For diabetes; None
Lantus insulin 8 units at night; For diabetes; None
Reglan 5 mg as needed; To aid in digestion; None
Hydrocodone 5mg/500 mg as needed; For fibromyalgia pain; Insomnia
Amaryl 4 mg twice a day; For diabetes; None
Calcium 600 mg twice a day; For bone health and osteoporosis; None
Tobramycin nasal irrigation 1 to 4 times daily; For irrigation of sinuses; None
Lemon Blueberry Bundt Cake
2 hours ago
8 comments:
Holy crap woman you take a lot of drugs!!! hehe :) I recognize some of those.
Though I am still pre-tx I didn't find it boring, rather I found it very interesting to see what I might have to look forward to some day.
Thanks for the post!! :)
<3
Ugh, you are such a "TROOPER"!
I pray for the day you never have to take another drug, you know...I have the radical faith to believe for that.
You amaze me...
I need to ask you about the bactrum, I wonder if I should be on that daily?
My legs are hurting so much from the steroids, I could barely sleep last night. But I am breathing a lil better this afternoon! Yay!
I know you are probably on some of those due to your recent kidney transplant...but wow...that's so much more than I take. Of course, I don't have diabetes or any liver/kidney issues. So I guess I'm pretty thankful...although I still take more meds prior to tx and they have accumulated over the years due to chronic rejection and pneumonia!! I like knowing what other drugs post-cf transplants take. I'm always curious...so thanks for the post!
I agree, I would much rather take pills than do treatments (nebulizers), but I'm so incredibly thankful I have them. I have pseudomonas too, yuck.
WOW! You are my hero! I have trouble just swallowing the 1 pill that i take every day!!
My Mom never had to worry about me becoming a drug adict. I hate swallowing pills and needles - uhmmm no thanks!
So, it's so funny that I'm starting nursing school next month!
YAY!!!!
I have only been working on this for the past 3 yrs.. taking pre and co requisites!
Anyway. I digress...
I'm so glad that you are doing much better and are able to enjoy the season!
How are Jason and Miss Cute Putie??? Are they excited about the holidays??
Holy. Crap. You are amazing and look amazing.
it sounds like our Dr's prescribed almost the exact same things for us...there were 3 I am not on but other than that our list are the same...too funny! I love when the pharmacist asks if I am on meds and I go through this and they look at me like I am crazy..lol have a good day..xoxo
Lori,
Even our moms say we are exactly alike... apparently our docs think the same. :)
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