My nephrology follow-up appointment went well today. I was in and out of there so quickly. I just can't get over it. When I go to lung transplant clinic, I'm literally there ALL day.
They lowered my prednisone dose to 20 mg/day. In 2 weeks, I'll go down to 15 mg as long as the blood work from today comes back ok. I'm waiting to hear something on that.
They aren't sure what is causing my hair loss. They really seemed unsure about whether the prednisone is doing it or not, but I still think it is. As long as new hair starts replacing the hair that I'm losing, I'm not going to worry about it.
My blood pressure has been running a little high despite the diuretic I'm taking, so they started me on a bp med for that. A few more small concerns were discussed, but most of them are due to the prednisone, and as I taper down my dose, those concerns will go away.
I finished my Christmas shopping today after my appointment. I'm DONE.. yay! Mom and I are at the hotel now just chillin'. I'm exhausted. I only got 3 hours of sleep last night, and I'm not used to a full day like this. Thankfully, there is a restaurant here at the hotel that we will go to tonight so we don't have to go back out.
I have my stent removed at 8:30 in the morning, and then we will head home. I hope all of you are having a wonderful Wednesday!
Wednesday, December 17, 2008
Quick Update
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5 comments:
So glad things went well for you today! You'll be off the high dose of crack in no time. ;)
Take some time for you, relax...
YEAH for the prednisone drop and getting the stent out! WOOHOO!
I can quite imagine how tired you must be. Dr. visits, alone, are tiring and then you went SHOPPING! Wow! Glad your mom is along with you and hope tomorrow AM goes well.
Don't you have to stay on Pred. for life when you've had a tx?
I assume they checked your vitamin levels to see if that's behind the hair loss.
You're so cute, you'd look cute bald - but I know you want your hair!
Yes Debbi, I do have to be on pred for life, but only 5 mg a day. I have been on that since 9 months after the first transplant, with the exception of a few months on 10 mg b/c of low cortisol levels. 5 mg doesn't really affect me that much as far as side effects go. I'll be back down to that pretty soon the way it's looking now.
Bald can be cute, but yeah, girls definitely want their hair. :)
I'm not sure if you've had a chance to see Robynn's blog. She passed away. Even though they live in Sacramento, they will go back to my hometown to have her services with Father Craig (he did my first communion, Our wedding, both my grandparents services...he is so amazing.) I feel so bad for her family. Thank you so much for praying for her. My grandfathers funeral was DEC 23rd in the same church 1 year ago. I wish I lived there so I could attend. What an amazing fighter she was!
Anyway, thanks!
Heidi
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